Stroke survivors live in fear and isolation

Stroke

Survey reveals stroke survivors' fears for the future 

2nd October 2019 by Robert Armour 1 Comment

More than one million stroke survivors live in fear of having another stroke and are scared to go out alone.

New findings from the Stroke Association also reveals the hidden barriers that people can face after stroke but are often too scared to talk to anyone about.

On top of dealing with these fears and concerns, the study also shows that many stroke survivors are facing their recovery alone.

This leads to a bleak attitude to recovery with almost nine in 10 (88%) survivors afraid they won’t get better and four out of five (80%) fearing they would get sent to a care home when they first had their stroke.

Fear prevents people from getting out and about and meeting others, two of the key factors that stroke survivors have said are integral to their recovery.

Juliet Bouverie, chief executive of the Stroke Association, said: “These stats are truly shocking. I am heart-broken to hear that stroke survivors felt they couldn’t speak to those closest to them about their biggest worries and fears. 

“When you live in isolation, too afraid to leave the house and are unable to ask for help, your motivation can disappear, and can leave you in a very bad place emotionally – feeling like a prisoner in your own home.”

The Stroke Association’s research also found that only 18% of stroke survivors were confident that they would get enough support to make a good recovery while 87% said they feared losing their independence.

Bouverie added: “I was horrified to find out that there are still many people who feel helpless. People are missing out on the life they could have – this must change.

“Don’t be afraid to ask questions about your health. We want everyone to know that you can rebuild your life after stroke.

“Every stroke is different and so is every recovery. It can take years to adjust to a new normal.”

10th October 2019 by A

I used to volunteer with Chest, Heart and Stroke Scotland on their community services supporting people post-stroke. By axing these services they let many vulnerable people and their families down. These were a great way for people to get out and meet people with the shared experiences of strokes and aphasia.